Mobility Envy
Lately, I’ve been wrestling with what I call “mobility envy." With the progression of my symptoms + added fatigue from the Texas heat, my...
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Jun 10, 2021
When a Realist Explains FA to Optimists and Pessimists
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 3, 2021
Sometimes Anniversaries Are Tough to Celebrate With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 27, 2021
My Idea of ‘Normal’ Is Skewed by FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 20, 2021
Heading Into an Uncharted Season With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 13, 2021
I’m Handling My FA Progression by Making Intentional Accommodations
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 6, 2021
Overcoming Mother’s Day Guilt as a Mom With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 30, 2021
God Is Good!
I am so incredibly HAPPY right now. My recently published article says, “Seeing my body fail bit by bit, day by day, is both...
Apr 29, 2021
The FA Obstacle Has Become the Way
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 22, 2021
Both Big and Little Moments Define My Life With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 18, 2021
Words of Wisdom by Meg Glidden
I grieve when I imagine my inevitable future and watch my health decline. There are days that I look for the good and other days I just...
Apr 15, 2021
When Real Life Collides With My Virtual FA Updates
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 8, 2021
Adventures in Shopping Without the Usual Aid of My Walker
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 1, 2021
As a Parent, My Emotions Are Complicated by FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 25, 2021
I’m Thankful for Friends I Met Before and After My Diagnosis
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 18, 2021
How My Disability Influences the Way My Children Daydream
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 11, 2021
A Springtime Perspective on What FA Has Given Me
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 8, 2021
Peripheral Neuropathy
Today, I learned that a new symptom associated with Friedreich's Ataxia has reared it’s ugly head and is here to stay. Peripheral...
Mar 4, 2021
How I Learned to Shine Rather Than Whine
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 25, 2021
The Battle Between Taking Care of Myself and Letting FA Ruin My Life
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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