Learning to Grow Through What I Go Through With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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Sep 22, 2021
Choosing To Trust The One Who Holds Your Future
I am the "Blog Boss" for the fantastic ministry, Fearless Mom. We let moms share their unique perspectives in hopes of encouraging other...
Sep 16, 2021
Fractured Foot Update
I received good news at my orthopedic follow-up appointment yesterday! Doc is already seeing healing! Keeping my FA in mind and the fact...
Sep 16, 2021
Taking Another Friedreich’s Ataxia Setback in Stride
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Sep 6, 2021
Another Broken Bone
Hi! Well, I have some bummer news that I would really appreciate some prayers for. Last night, I fell getting up out of my chair after...
Sep 2, 2021
I Overcame My Hesitancy to Use Mobility Aids, and You Can, Too
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Aug 26, 2021
Acknowledging the Anniversary of My Diagnosis
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Aug 19, 2021
Advice after 8 Years with FA
I was diagnosed with Friedreich's Ataxia 8 years ago today. 8 years ago today, the random symptoms I was experiencing were validated by...
Aug 19, 2021
Feeling Like a Burden on Vacation Because of My Disability
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Aug 5, 2021
Slow and Steady Doesn’t Always Win the Race
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 29, 2021
Navigating Hope and Worry With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 22, 2021
What My Recumbent Trike Means To Me
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 21, 2021
Hank - The Mobility Service Great Dane
Meet Hank Harvey, the Great Dane! We have big plans for this gentle giant. He is going to be trained as my Balance & Mobility Service...
Jul 15, 2021
A Letter to My Newly Diagnosed Self
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 8, 2021
Keep Shining
Lately, I’ve been really struggling. I’m burnt out from fighting my body every second of every day. I’ve reached the end of myself. I...
Jul 8, 2021
Deciding to Conserve Energy Rather Than Embracing the Moment Is Challenging
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 1, 2021
This 4th of July, I’m Redefining My Independence From FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 24, 2021
Reminding Myself to Appreciate My Mobility Aid
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 22, 2021
Luke Cooper
One of the aspects I avoid thinking about or sharing about Friedreich’s Ataxia is how it is a life-shortening disease. But, it is. FA is...
Jun 17, 2021
Love Is the Consistent Remedy for My FA Blues
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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