My Main FA Symptoms, Visible and Not
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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Apr 14, 2022
What I Hope My Kids Will Inherit From My Life With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 7, 2022
I Am Not My Disability
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 31, 2022
I Have a Love-hate Relationship With My Walker
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 26, 2022
Hank Update!
For those of you wondering how big #HankTheServiceDane is, here’s a picture of my giant cuddly sunflower today (and he’s still just a...
Mar 24, 2022
Reminding Myself to Focus on the Positive
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 17, 2022
An Open Letter to My Parents
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 10, 2022
Following These 3 Rules Enables Me to Live Well With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 8, 2022
What is the hardest part about living with Friedreich's ataxia?
If you were to ask me, "What is the hardest part about living with Friedreich's ataxia?" I would answer that it is accepting the...
Mar 3, 2022
I Choose How to Respond to FA Challenges
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 28, 2022
Fearless Mom Conference
The Fearless Mom conference this weekend was ah-maze-ing! @juliesrichard @raisingboysandgirls @drrobi_s @hollyfurtick @kidsfaithkrate...
Feb 24, 2022
Friedreich’s Ataxia Requires Regular Updates
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 17, 2022
Accepting Love, Even When FA Makes It Hard
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 10, 2022
Hank at School!
Hank went to show & tell at school today to help educate students about service dogs! He did great and I am so proud of him. Do you have...
Feb 3, 2022
Self-awareness Helps Me Navigate the Unexpected
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 28, 2022
First 2022 Clinical Trial Visit
Although sitting in an airport, riding on 2 planes in 1 day, all to hang out in a hospital all day, isn’t my ideal Friday, I am thankful...
Jan 27, 2022
Hank is a Certified Service Dog!
My sweet Hank passed his public access training test with a 100% score today! He is now an officially certified service dog! That means...
Jan 27, 2022
My FA Status Update: It’s Complicated
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 20, 2022
The Pity of Strangers and the Love of Loved Ones
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 18, 2022
Finding Peace in the "AND"
I am the "Blog Boss" for the fantastic ministry, Fearless Mom. We let moms share their unique perspectives in hopes of encouraging other...
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