Life is made up of choices, and after hearing the words, "Kendall, I am sorry to say this, but you have Friedreich's Ataxia," 9 years ago...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

How it started v how it’s going! One year ago today, we drove 12 hours round trip to pick up Hank. This year has been full of learning,...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I started a double-blind placebo-controlled 48-week clinical trial in September 2018. After the 48-weeks, I enrolled in the open-label...

Day date in Atlanta! Kidding. Heading to Emory to be a lab rat for the clinical trial. But, hey, it’s all about my perspective, right?...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

Every time we get a couple of weeks into a new season of life, like “back to school”, summer break, or baseball season, I find myself...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

9 years ago today, my friends and I won the sand volleyball championship! What you can't see in this picture is that this season of sand...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...