Include intentionality and kindness in all of your interactions
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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May 25, 2023
I’ve been on Skyclarys for nearly 5 years. Here are my thoughts.
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 18, 2023
A typical day in my life with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 11, 2023
Finding balance between my roles as a mom and a person with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 4, 2023
A legacy that goes beyond a mutated FA gene
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 27, 2023
What FA taught me about how to ask for help
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 20, 2023
The innocence of children is a wondrous thing
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 13, 2023
Whether our disability is visible or not, we all deserve kindness
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 6, 2023
What to do when words can’t calm the FA storm
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 30, 2023
Adjusting to new mobility aids as my FA symptoms progress
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 23, 2023
What I learned during a family ski trip with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 9, 2023
Reminding myself that I’m worthy of love, even with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 2, 2023
Am I living a disabled life, or am I living life with a disability?
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 23, 2023
When FA leaves me feeling trapped by my physical limitations
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 9, 2023
A timeline of my FA progression, part 3
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 2, 2023
A Timeline of My FA Progression, Part 2
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 26, 2023
A Timeline of My FA Progression, Part 1
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 19, 2023
Four Years with a Walker
There are many kinds of anniversaries and today is a complicated one for me. Today marks 4 years that I have been 100% dependent on my...
Jan 12, 2023
Considering Our Response to Living With Rare Medical Conditions
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 6, 2023
January 2023 Clinical Trial Visit
After much deliberation over countless pros and cons lists, I’ve prayerfully decided to continue participating in the clinical trial for...
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