Fearfully and Wonderfully Made
We have all heard that part of Psalm 139. How we are “fearfully and wonderfully made” and how God “knit me together in my mothers’ womb.”...
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Jul 23, 2015
The Big Study in The Big Apple
As a Friedreich’s Ataxia (FA) patient, I want to do whatever I can to contribute to finding a cure for this disease. Not only for myself...
Jul 13, 2015
FARA is on Instagram!
As an ambassador for the Friedreich's Ataxia Research Alliance (FARA), I volunteered to assist with the social media team. On this team,...
Jun 5, 2015
Interferon Gamma Trial in Phase 3!
Horizon Pharma, a biopharmaceutical company focused on improving patients' lives by identifying, developing, acquiring and...
May 27, 2015
The Ataxian
Kyle Bryant, FARA national spokesman and founder of Ride Ataxia, led a team in a legendary bike ride across America in 2010. When Redwood...
May 20, 2015
Raising Awareness in Texas!
Every year, the Friedreich’s Ataxia Research Alliance (FARA) has Friedreich’s Ataxia Awareness Day on the third Saturday in May. It is...
May 12, 2015
FA Awareness Day 2015
Every year, the third Saturday in May is Friedreich’s Ataxia Awareness day. To help boost awareness this year, I petitioned Texas...
May 4, 2015
Research Study at Weill Cornell Medical College
I am going to participate in a study researching cardiomyopathy in Friedreich's Ataxia (FA) patients. The Department of Genetic Medicine...
Apr 28, 2015
FARA Ambassador
I am officially an Ambassador for the Friedreich’s Ataxia Research Alliance (FARA)! Members of The FARA Ambassador Program are FA patient...
Apr 15, 2015
Ride Ataxia 2015
Another RideATAXIA is in the books for Team Kendall – and what a fun event it was! We had a great turn-out at the ride and made a lot of...
Mar 17, 2015
Phase 2 of Promising FA Trial to Begin!
The FA community received FANTASTIC new this week! Reata Pharmceuticals, who is focusing on correcting mitocondiral disfunction which...
Mar 7, 2015
Why do FA patients ride trikes?
I am sure you have noticed that a lot of my pictures for RideATAXIA are of me on a recumbent trike. Wonder why? Well the answer is quite...
Feb 26, 2015
Where do Team Kendall donations go?
When you donate to Team Kendall or sponsor any Team Kendall riders in RideATAXIA, 100% of your donations go straight to the Friedreich’s...
Feb 5, 2015
Move YOUR Way Awareness Day!
February 28th is National Rare Disease Day. Friedreich’s Ataxia (FA) is a rare disease affecting approximately 5,000 people in the US and...
Jan 16, 2015
2015 Ride Ataxia Information
Initiated in 2007, Ride Ataxia has raised invaluable awareness for Friedreich’s Ataxia (FA) and over $3 million in support of FA research...
Jan 12, 2015
What is it really like to have FA?
In this video, Kyle Bryant (Friedreich’s Ataxia (FA) patient and RideATAXIA creator) talks FA with Tampa Bay Buccaneers player Ronde...
Jan 5, 2015
Pregnancy and Friedreich's Ataxia
I found out that I had Friedreich’s Ataxia (FA) on August 19, 2013. At first, I thought that the entire future I had planned for my...
Dec 4, 2014
Support the Newborn Screening Saves Lives Reauthorization Act
Hello friends, Would you be able to help us with an advocacy request from FARA President, Ron Bartek? Senator Ted Cruz is one of five...
Nov 4, 2014
Words to Live By
So often, it is all too easy to get caught up in the drama of life. To throw pity parties, to complain about how busy you are or how...
Sep 10, 2014
2014 FA Symposium
As you probably recall, we just passed the year anniversary of my Friedreich's Ataxia diagnosis (August 19th). To reflect on the past...
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