2018 rideATAXIA Information
rideATAXIA is a nation-wide program of bike rides that welcomes people of all abilities to ride, and to raise funds for the Friedreich’s...
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Dec 31, 2017
Gratitude for FARA
As a person with Friedreich’s Ataxia (FA), the task of going on with life can seem a bit daunting. In more ways than one. For starters,...
Dec 21, 2017
Gene Therapy News from UCLA
I am certainly no scientist or medical expert, but I am a very determined and hopeful person. I truly believe that we WILL see a cure for...
Oct 24, 2017
Toddler Wisdom
I have been struggling lately. My FA symptoms, specifically my balance, have gotten worse. I fear that my time to use a walker (part...
Sep 10, 2017
Why I'm Proud to be 30!
When I was 25, just weeks away from my 26th birthday, my life changed forever. And honestly, I thought my life was over. I was diagnosed...
Aug 19, 2017
4 Years with FA
Today marks 4 years since I was diagnosed with Friedreich's Ataxia. This disease is hard. It's relentless and unfair. But it has also...
May 18, 2017
Collins Claire Harvey
Our baby girl is here! Collins Claire Harvey was born May 18, 2017 at 1:17 pm. She is a perfect 7lb 8oz, 20.25 inches. Her arrival was...
Apr 10, 2017
rideATAXIA 2017 Write-Up
Team Kendall's 4th annual rideATAXIA is in the books, and what a memorable one it was! Thank you to all of our MANY supporters for making...
Jan 16, 2017
Gene Editing Advancement
Exciting and encouraging news is making its way around the Friedreich's Ataxia (FA) community today. Article highlights include:...
Jan 8, 2017
2017 rideATAXIA Information
rideATAXIA is a nation-wide program of bike rides that welcomes people of all abilities to ride, and to raise funds for the Friedreich’s...
Jan 2, 2017
It's A GIRL!
Team Kendall is growing! My husband, Kyle, and I are expecting another baby in May 2017! We have found out that this time we are having a...
Dec 31, 2016
Possibilities of Vitamin B1 in FA Patients
A recent foreign study is creating a lot of buzz in the Friedreich’s Ataxia (FA) community. "Injections of vitamin B1 improved several...
Dec 12, 2016
Horizon Interferon Gamma Trial
The Friedreich’s Ataxia (FA) community recently had the unfortunate news about the Horizon Interferon Gamma Trial ending in failure. A...
Dec 9, 2016
21st Century Cures Act
After much hard work and dedication - the rare diseases community received amazing and encouraging news from NORD (National Organization...
Nov 22, 2016
Educate and Kill Em with Kindness
A friend a fellow Friedreich's Ataxia (FA) patient (who lives in Australia) names Leah Alstin recently made this post on Instagram and...
Sep 17, 2016
Tim Tebow Supports FA Awareness
I think Tim Tebow is a stand-up guy and a great role model for young men. He is an outspoken Christian and uses what he has been blessed...
Apr 26, 2016
2016 rideATAXIA Write-Up
Thanks for helping us add another great rideATAXIA to the books, team! We had a great turnout. The Dallas ride raised over $89,000!...
Feb 10, 2016
Tye and Emily, A Love Story
My friend and fellow FA patient, Emily Penn, recently married her sole mate, Tye Baudin. A local DFW news station did a sweet summary of...
Jan 7, 2016
2016 rideATAXIA Dallas Information
Initiated in 2007, rideATAXIA has raised invaluable awareness for Friedreich’s Ataxia (FA) and over $3 million in support of FA research...
Sep 24, 2015
Patient Panel at the FARA Symposium
As many of you know, I recently went to Tampa for the 7th FARA Symposium at the University of Southern Florida (USF). I was so honored to...
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