Adjusting to Walker Life
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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Aug 21, 2019
Counting my Blessings
Every night, I read a book and say prayers with my kiddos. Kyle puts Brooks to bed and I snuggle Collins. Collins was wiggly and kicking...
Aug 19, 2019
6 Years with Friedreich's Ataxia
6 years ago today, I heard the words “Friedreichs Ataxia” for the first time. Since that day, I’ve barely had a waking moment where I’m...
Aug 4, 2019
Rollz (Update!)
Yay! She’s here! Now, here’s the thing I need to explain about walkers: Walking is hard with or without a walker (thanks to FA.) Always....
Jul 26, 2019
Rollz - My New Ride
Today was a big day. I ordered a new assistive device. It’s called a Rollz Motion (Rollz International ) ♿️ It’s a rollator (walker) &...
Jul 16, 2019
Snack Wagon
My walker, aka “Snack Wagon,” is hard at work today. This is how my walker looks any given moment at home. Full of toddler deposited...
Jul 8, 2019
Curious Friends
As my 4.5 year-old son, Brooks, gets older, so do his friends. They are more observant and more curious about their world. It’s only...
Jun 20, 2019
Donning my FA Hat
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 11, 2019
Tattoo
*Sorry in advance to family that didn’t know about my tattoo... 😬* Dashboard Confessional is my favorite band. Their music has meant so...
May 28, 2019
Celebrate ALL Milestones
Happy to report that May 28, 2019 ends with all my bones in tact and both feet facing the right way. May, 28, 2018 taught me to never...
May 21, 2019
Fearless Mom Speech
Here it is, folks! My speech at Fearless Mom! I was so honored to have the opportunity to share my story on this stage to all of the...
May 20, 2019
Rise and Shine
I had my first fall in a loooong time. Luckily no one got hurt 🙏🏻🙌🏻 I was in Collins’s room and was turning to grab something and...
May 16, 2019
Wishing Away FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 18, 2019
Walkers and Curious Kids
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 28, 2019
Austin Knows How to Treat People with Disabilities
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 7, 2019
What Fundraising Means to Me
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 28, 2019
Becoming Dependent Restored My Independence
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 21, 2019
Respecting My Body Despite FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 15, 2019
Lessons from First Graders
One of my biggest fears about being a mother with Friedreich’s Ataxia is my kids experiencing ridicule or bullying because of me. I want...
Feb 14, 2019
Starting a Clinical Trial
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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