Pros and Cons of Mothering with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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May 7, 2020
It’s OK to Ask Me About FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 3, 2020
Lend Us Some Muscle
Lend Us Some Muscle! FARA Australia’s campaign to raise awareness for Friedreichs Ataxia! Snap a picture flexing and share it with the...
Apr 30, 2020
rideATAXIA 2020 Postponed
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 29, 2020
100 Days!!
This is a major knock-on-wood statement but I firmly believe in celebrating the little things and I want to shout this from the rooftops:...
Apr 16, 2020
Having FA + A New Puppy = Craziness
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 14, 2020
New Adventure... oops!
Fellow Friedreichs Ataxia patients... looking for a way to see how your hand dexterity is affected? Cut a guys hair #SorryBabe don’t...
Apr 2, 2020
Journaling Helped Me Document My FA Progression
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 28, 2020
rideATAXIA 2020
Today was our 7th annual rideATAXIA fundraising bike ride. We might not have been able to ride in Dallas today with the rest of the FA...
Mar 19, 2020
My Relationship with Physical Therapy
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 19, 2020
FA and COVID19
I’ve had a lot of friends reaching out to me about the Coronavirus and how I’m surviving our #Coronacation. As you likely know, I have...
Mar 10, 2020
Fearless Interview
In case you missed it... I did a video about my life with Friedreich's Ataxia. I had the honor of sharing more of my story at Fearless...
Feb 29, 2020
Fearless Fighter Award
Such an unforgettable day! I’ve never felt so honored, celebrated, capable, special, strong and encouraged THANK YOU @fearless_mom for...
Feb 26, 2020
Love for Snack Wagon
When we were on our way out the door to go to dinner, Collins petted the walker that I leave in the house and said, “Bye Snack Wagon!...
Feb 24, 2020
Team Kendall Bracelets by Brooks!
Looking for incentive to be a part of Team Kendall (besides helping to cure Friedreich's Ataxia)? All of our team members will get an...
Feb 16, 2020
rideATAXIA #7!
Lucky number 7! I can’t believe that Team Kendall will ride in our 7th rideATAXIA next month! I am so crazy proud to be a part of this...
Feb 13, 2020
Playground Bully
I had my first encounter with a playground bully today. I took the kiddos to meet friends at a restaurant with a playground for lunch....
Jan 22, 2020
Snuggles Fix (mostly) Everything
Soaking in all the snuggles I can get with my baby girl (+ Winnie and Rapunzle) I had a pretty scary fall this afternoon while home alone...
Jan 19, 2020
One Year with my Walker
One year ago today I made the decision to use my walker full time. I made that decision to preserve energy and (hopefully) prevent...
Jan 16, 2020
New Team Kendall Banner!
My marketing team is pretty stoked to unveil our new banner for #rideATAXIA 2020! #CureFA
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