Swimming Despite the Difficulty
My whole life I have LOVED swimming. It has always been a huge part of my life. Even after my Friedreich's Ataxia diagnosis, I kept...
top of page
Jul 30, 2020
Maintaining Abilities With Friedreich’s Ataxia
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 23, 2020
I’ve Chosen to Be Intentionally Courageous
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 16, 2020
Battling ‘Mobility Envy’ as My FA Symptoms Progress
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 9, 2020
Seizing What I Can from Life
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 2, 2020
Growing Bigger Than Friedreich’s Ataxia
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 1, 2020
Choosing to be SILLY
My kids are SUPER into hide and seek right now. They play it with Kyle for about 45 minutes every night after dinner. Hearing their...
Jun 25, 2020
Behind Closed Doors: Why I Share the Reality of FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 24, 2020
Embracing Your Handicaps
“Rebellion against your handicaps gets you nowhere. Self-pity gets you nowhere. One must have the adventurous daring to accept oneself as...
Jun 18, 2020
I Get by with a Little Help From (everyone)
My sweet sweet boy. I was filling the kids’ water bottles, therefore my hands were busy and not on my walker. Brooks came over and bear...
Jun 18, 2020
How I’ve Adapted to Being Disabled in an Able-bodied World
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 17, 2020
Back At It
When the world stopped for COVID19, Friedreichs Ataxia didn’t stop. My progression didn’t stop. However, physical therapy did. I missed...
Jun 11, 2020
Fairy Tales, Dreams, and a Cure for FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 4, 2020
Choosing Hope Over Fear with Friedreich’s Ataxia
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 28, 2020
Instagram vs. Reality with Mobility Aids
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 28, 2020
Celebrate Every Victory
Today marks two years since I fell and obliterated my ankle. Friedreichs Ataxia won that day. I honestly thought that life as I knew it...
May 24, 2020
Trust
Love this reminder as I (im)patiently await a cure for Friedreichs Ataxia. Life is beautiful, even with this ugly disease. #CureFA#GodIsGood
May 21, 2020
Head to Toes with FA
One unfortunate part of Friedreichs Ataxia is how it progressively affects all aspects of my body. Unfortunately, FA has taken hold of my...
May 17, 2020
Wise Words from a Wise Friend
Beautiful words from a beautiful friend who is also navigating this whole “being a mom with Friedreichs Ataxia gig.” Love you big Emily...
May 16, 2020
The "Good Ol Days"
This was a few months before my Friedreichs Ataxia diagnosis. This season of sand volleyball is where I realized that something was not...
bottom of page