You and Your Children were Made For Each Other
I am the "Blog Boss" for the fantastic ministry, Fearless Mom. We let moms share their unique perspectives in hopes of encouraging other...
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Feb 18, 2021
On Good Days, I Fear the Sleeping FA Giant
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 14, 2021
Happy Valentine's Day 2021
Happy Valentine’s Day, friends! I realize that I have not given a FA update in a while (or “in a long long day” as Collins would say.)...
Feb 11, 2021
It Takes a Village to Live With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 4, 2021
How I Respond to Pity as a FA Patient
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 28, 2021
How I Protect My Blindside From FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 21, 2021
How I Get Through Bad Days With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 19, 2021
2 Year Anniversary With My Walker
Today is the 2 year anniversary of using my walker full time. What a weird anniversary. Part of me can’t believe it has only been two...
Jan 14, 2021
The FA Community Needs Your Help to Advance a Potential Treatment
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jan 7, 2021
Brooks' Mommy
My sweet boy. Last night, he was showing me how he can "dry his hair really fast" by swishing his towel from side to side really fast. He...
Jan 7, 2021
My Loved Ones Perceive My Symptom Progression Differently
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Dec 17, 2020
December 2020 Cardiac Update
Today, I am doing a nuclear stress test + imaging to hopefully & officially rule out cardiomyopathy. My echocardiogram a few weeks ago...
Dec 17, 2020
Calming the FA Storm
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Dec 10, 2020
Acknowledging My Disability Is Empowering
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Dec 3, 2020
I’m Thankful for So Much, Even With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Dec 2, 2020
Disabled and Victorious!
I felt equal parts disabled and victorious today. I tackled Costco solo. The carts at this Costco are really far away from the...
Nov 19, 2020
Child of God
Yes, I have Friedreich's Ataxia. Yes, I use a walker because my FA has control of my legs. But FA does NOT have my heart! My...
Nov 19, 2020
FA Has Taught Me A Lot
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Nov 12, 2020
The Importance of Being Your Own Advocate
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Nov 11, 2020
Feeling Inadequate and Perfectly Equipped
I am the "Blog Boss" for the fantastic ministry, Fearless Mom. We let moms share their unique perspectives in hopes of encouraging other...
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