Why do FA patients ride trikes?
I am sure you have noticed that a lot of my pictures for RideATAXIA are of me on a recumbent trike. Wonder why? Well the answer is quite...
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Jan 12, 2015
What is it really like to have FA?
In this video, Kyle Bryant (Friedreich’s Ataxia (FA) patient and RideATAXIA creator) talks FA with Tampa Bay Buccaneers player Ronde...
Jan 5, 2015
Pregnancy and Friedreich's Ataxia
I found out that I had Friedreich’s Ataxia (FA) on August 19, 2013. At first, I thought that the entire future I had planned for my...
Sep 10, 2014
2014 FA Symposium
As you probably recall, we just passed the year anniversary of my Friedreich's Ataxia diagnosis (August 19th). To reflect on the past...
Aug 18, 2014
What a Difference a Year Makes
What a difference a year makes! On August 19, 2013, I was diagnosed with Friedreich’s Ataxia (FA). At the time, I knew nothing of the...
Jul 9, 2014
Guest blog post to help raise awareness!
A new friend of mine, Lora, is living with Rheumatoid Arthritis. However, she is not letting the chronic illness hold her back! She has a...
Jul 7, 2014
FARA Newsletter Featuring Team Kendall
The Friedreich’s Ataxia Research Alliance (FARA), just released the new summer edition of the FARA newsletter- The Advocate! I recently...
Jan 21, 2014
Friedreich's Ataxia Treatment Advancement
The Friedreich's Ataxia Research Alliance announced today that BioMarin Pharmaceutical, a company with a strong commitment and success in...
Jan 2, 2014
What causes FA symptoms?
As we know, Friedreich's Ataxia (FA) is a genetic disease. You have FA if both of your parents passed on a damaged allele to you. Every...
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