First 2022 Clinical Trial Visit
Although sitting in an airport, riding on 2 planes in 1 day, all to hang out in a hospital all day, isn’t my ideal Friday, I am thankful...
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May 20, 2015
Raising Awareness in Texas!
Every year, the Friedreich’s Ataxia Research Alliance (FARA) has Friedreich’s Ataxia Awareness Day on the third Saturday in May. It is...
May 12, 2015
FA Awareness Day 2015
Every year, the third Saturday in May is Friedreich’s Ataxia Awareness day. To help boost awareness this year, I petitioned Texas...
Apr 15, 2015
Ride Ataxia 2015
Another RideATAXIA is in the books for Team Kendall – and what a fun event it was! We had a great turn-out at the ride and made a lot of...
Mar 7, 2015
Why do FA patients ride trikes?
I am sure you have noticed that a lot of my pictures for RideATAXIA are of me on a recumbent trike. Wonder why? Well the answer is quite...
Feb 26, 2015
Where do Team Kendall donations go?
When you donate to Team Kendall or sponsor any Team Kendall riders in RideATAXIA, 100% of your donations go straight to the Friedreich’s...
Feb 5, 2015
Move YOUR Way Awareness Day!
February 28th is National Rare Disease Day. Friedreich’s Ataxia (FA) is a rare disease affecting approximately 5,000 people in the US and...
Jan 16, 2015
2015 Ride Ataxia Information
Initiated in 2007, Ride Ataxia has raised invaluable awareness for Friedreich’s Ataxia (FA) and over $3 million in support of FA research...
Jan 12, 2015
What is it really like to have FA?
In this video, Kyle Bryant (Friedreich’s Ataxia (FA) patient and RideATAXIA creator) talks FA with Tampa Bay Buccaneers player Ronde...
Jan 5, 2015
Pregnancy and Friedreich's Ataxia
I found out that I had Friedreich’s Ataxia (FA) on August 19, 2013. At first, I thought that the entire future I had planned for my...
Dec 4, 2014
Support the Newborn Screening Saves Lives Reauthorization Act
Hello friends, Would you be able to help us with an advocacy request from FARA President, Ron Bartek? Senator Ted Cruz is one of five...
Sep 10, 2014
2014 FA Symposium
As you probably recall, we just passed the year anniversary of my Friedreich's Ataxia diagnosis (August 19th). To reflect on the past...
Aug 18, 2014
What a Difference a Year Makes
What a difference a year makes! On August 19, 2013, I was diagnosed with Friedreich’s Ataxia (FA). At the time, I knew nothing of the...
Aug 14, 2014
Chondrial Therapeutics LLC is developing a drug for Friedreich’s Ataxia
Doctors with Chondrial Therapeutics LLC are on the verge of a human trial to test a delivery method of a protein called frataxin, which...
Jul 9, 2014
Guest blog post to help raise awareness!
A new friend of mine, Lora, is living with Rheumatoid Arthritis. However, she is not letting the chronic illness hold her back! She has a...
Jul 7, 2014
FARA Newsletter Featuring Team Kendall
The Friedreich’s Ataxia Research Alliance (FARA), just released the new summer edition of the FARA newsletter- The Advocate! I recently...
Jun 11, 2014
2014 Ride Ataxia in Dallas
Team Kendall participated in our very first Ride Ataxia on March 29, 2014. All I can say is WOW! What an amazing day. I wanted to get...
Mar 17, 2014
FDA Fast-Tracks Friedreich's Ataxia Drug
The Friedreich’s Ataxia (FA) community received even MORE great news today! Edison Pharmaceuticals announced that the U.S. Food and Drug...
Mar 5, 2014
FA Drug Continues Momentum in Clinical Development
In the monthly newsletter from the Friedreich's Ataxia Research Alliance (FARA), the FA community received great news about a promising...
Jan 21, 2014
Friedreich's Ataxia Treatment Advancement
The Friedreich's Ataxia Research Alliance announced today that BioMarin Pharmaceutical, a company with a strong commitment and success in...
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