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Feb 26, 2015
Where do Team Kendall donations go?
When you donate to Team Kendall or sponsor any Team Kendall riders in RideATAXIA, 100% of your donations go straight to the Friedreich’s...
Sep 10, 2014
2014 FA Symposium
As you probably recall, we just passed the year anniversary of my Friedreich's Ataxia diagnosis (August 19th). To reflect on the past...
Aug 14, 2014
Chondrial Therapeutics LLC is developing a drug for Friedreich’s Ataxia
Doctors with Chondrial Therapeutics LLC are on the verge of a human trial to test a delivery method of a protein called frataxin, which...
Jul 7, 2014
FARA Newsletter Featuring Team Kendall
The Friedreich’s Ataxia Research Alliance (FARA), just released the new summer edition of the FARA newsletter- The Advocate! I recently...
Mar 17, 2014
FDA Fast-Tracks Friedreich's Ataxia Drug
The Friedreich’s Ataxia (FA) community received even MORE great news today! Edison Pharmaceuticals announced that the U.S. Food and Drug...
Mar 5, 2014
FA Drug Continues Momentum in Clinical Development
In the monthly newsletter from the Friedreich's Ataxia Research Alliance (FARA), the FA community received great news about a promising...
Jan 21, 2014
Friedreich's Ataxia Treatment Advancement
The Friedreich's Ataxia Research Alliance announced today that BioMarin Pharmaceutical, a company with a strong commitment and success in...
Jan 2, 2014
What causes FA symptoms?
As we know, Friedreich's Ataxia (FA) is a genetic disease. You have FA if both of your parents passed on a damaged allele to you. Every...
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