Although sitting in an airport, riding on 2 planes in 1 day, all to hang out in a hospital all day, isn’t my ideal Friday, I am thankful...

Today, I learned that a new symptom associated with Friedreich's Ataxia has reared it’s ugly head and is here to stay. Peripheral...

My whole life I have LOVED swimming. It has always been a huge part of my life. Even after my Friedreich's Ataxia diagnosis, I kept...

My kids are SUPER into hide and seek right now. They play it with Kyle for about 45 minutes every night after dinner. Hearing their...

“Rebellion against your handicaps gets you nowhere. Self-pity gets you nowhere. One must have the adventurous daring to accept oneself as...

When the world stopped for COVID19, Friedreichs Ataxia didn’t stop. My progression didn’t stop. However, physical therapy did. I missed...

Today marks two years since I fell and obliterated my ankle. Friedreichs Ataxia won that day. I honestly thought that life as I knew it...

One unfortunate part of Friedreichs Ataxia is how it progressively affects all aspects of my body. Unfortunately, FA has taken hold of my...

Beautiful words from a beautiful friend who is also navigating this whole “being a mom with Friedreichs Ataxia gig.” Love you big Emily...

This was a few months before my Friedreichs Ataxia diagnosis. This season of sand volleyball is where I realized that something was not...

This is a major knock-on-wood statement but I firmly believe in celebrating the little things and I want to shout this from the rooftops:...

Fellow Friedreichs Ataxia patients... looking for a way to see how your hand dexterity is affected? Cut a guys hair #SorryBabe don’t...

Today was our 7th annual rideATAXIA fundraising bike ride. We might not have been able to ride in Dallas today with the rest of the FA...

I’ve had a lot of friends reaching out to me about the Coronavirus and how I’m surviving our #Coronacation. As you likely know, I have...

When we were on our way out the door to go to dinner, Collins petted the walker that I leave in the house and said, “Bye Snack Wagon!...

I had my first encounter with a playground bully today. I took the kiddos to meet friends at a restaurant with a playground for lunch....

Soaking in all the snuggles I can get with my baby girl (+ Winnie and Rapunzle) I had a pretty scary fall this afternoon while home alone...

One year ago today I made the decision to use my walker full time. I made that decision to preserve energy and (hopefully) prevent...

My marketing team is pretty stoked to unveil our new banner for #rideATAXIA 2020! #CureFA

Sometimes I wish I still lived in my 22 year old world where I’d never heard of Friedreichs Ataxia in 2010. I despise what FA has done to...