How I continue to adapt to life with my ‘darling disability’
Teachable moments I encounter as a parent with FA
How I explained my disability due to FA to my children
Starting the process that’ll lead to me relying on a wheelchair
Doing what is necessary as my FA symptoms progress
Strategies I’ve developed for coping with my fear of FA
Fighting battles with FA ‘between my ears’
It’s OK to feel your feelings, including the challenging ones
Travel with a disability requires careful decisions and planning
The risk of falling is always present with FA
With an FA diagnosis comes a new label, but what does it mean?
When breaking my routine leads to a dampened spirit
As an FA patient, what exactly do ‘progress’ and ‘progression’ mean?
Fatigue management relies on careful planning, being intentional
Managing reality, expectations, and hope with FA
Responding to unsolicited pity as someone with a disability
These important life lessons guide me when others react to my FA
It’s time to stop overly relying on my FA ‘can’t do’ list
Handling my life when it’s not easy being me
Other people’s compassion teaches me how to practice self-love