How I continue to adapt to life with my ‘darling disability’
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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Oct 10
Teachable moments I encounter as a parent with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Sep 12
How I explained my disability due to FA to my children
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Aug 29
Starting the process that’ll lead to me relying on a wheelchair
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Aug 8
Doing what is necessary as my FA symptoms progress
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 25
Strategies I’ve developed for coping with my fear of FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 18
Fighting battles with FA ‘between my ears’
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 11
It’s OK to feel your feelings, including the challenging ones
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 27
Travel with a disability requires careful decisions and planning
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 13
The risk of falling is always present with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 6
With an FA diagnosis comes a new label, but what does it mean?
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 16
When breaking my routine leads to a dampened spirit
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 9
As an FA patient, what exactly do ‘progress’ and ‘progression’ mean?
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 25
Fatigue management relies on careful planning, being intentional
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 18
Managing reality, expectations, and hope with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 28
Responding to unsolicited pity as someone with a disability
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 14
These important life lessons guide me when others react to my FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 29
It’s time to stop overly relying on my FA ‘can’t do’ list
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 22
Handling my life when it’s not easy being me
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 15
Other people’s compassion teaches me how to practice self-love
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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