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Oct 31, 2024
How I continue to adapt to life with my ‘darling disability’
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Oct 10, 2024
Teachable moments I encounter as a parent with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Sep 12, 2024
How I explained my disability due to FA to my children
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Aug 29, 2024
Starting the process that’ll lead to me relying on a wheelchair
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Aug 8, 2024
Doing what is necessary as my FA symptoms progress
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 25, 2024
Strategies I’ve developed for coping with my fear of FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 18, 2024
Fighting battles with FA ‘between my ears’
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jul 11, 2024
It’s OK to feel your feelings, including the challenging ones
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 27, 2024
Travel with a disability requires careful decisions and planning
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 13, 2024
The risk of falling is always present with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Jun 6, 2024
With an FA diagnosis comes a new label, but what does it mean?
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 16, 2024
When breaking my routine leads to a dampened spirit
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
May 9, 2024
As an FA patient, what exactly do ‘progress’ and ‘progression’ mean?
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 25, 2024
Fatigue management relies on careful planning, being intentional
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Apr 18, 2024
Managing reality, expectations, and hope with FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 28, 2024
Responding to unsolicited pity as someone with a disability
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Mar 14, 2024
These important life lessons guide me when others react to my FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 29, 2024
It’s time to stop overly relying on my FA ‘can’t do’ list
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 22, 2024
Handling my life when it’s not easy being me
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
Feb 15, 2024
Other people’s compassion teaches me how to practice self-love
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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